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feelin good

Saw 2nd doc today – Dr. Lee. He basically concurred with everything Dr. Brandabur said, except he said he’d probably be more agressive – but just slightly more than Dr. B. He essentially said he’d taper me off the Pred quicker than Dr. B, but otherwise do everything the same. Going to stick with Dr. B. I’m bouncing between 151 and 154 in weight. Got up at 3 am, did situps, then played tennis for 1.5 hrs with LPK at 5:30 am. All is good except for cramps… hands tingling and shaking. down to 40mg of Predz a day.

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today

went to bed at 11, got up at 3:45… did 60 crunches and 40 pushups… feel very good.. did a 3 mi walk with elsa.. saw 3 elk… i weigh 151. still buzzing but not as hard which i guess is good… feeling a little more ‘normal’ now….

Lesa/Gabe leave today and LPK/KC come. Should be a fun time.

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today

went to bed at 11, got up at 4:30… dahlia peed the bed last night unfortunately.. on the down comforter so we have to get that dry cleaned. On the health front, knee still has a bump in it but walkable. doc says not to worry. i got up and went and worked out for 45 mins hard. felt good. in the middle of a rep my right muscle just stopped working and i basically dropped the weight. that’s roids for you – you have no idea how far you can push it probably. i go for my 3 hr infusion today at 10am. i hope i can just sleep through it. poor d has a small cold in her throat. her voice is so damn cute. i wish i could just stick it here. in fact i think i can. i need to find an ipod and do it. one sec

nope couldn’t find it. damn. i will find it and stick some audio of her up. she has the sweetest voice.

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today

actually went to bed around 10:30 (bad) but got up at about 3:30, went to another bed, then then back to bed till about 6am. weird dreams but hey… that was some sleep… things are getting a little normal-er. not as amped this AM… which makes me happy and sad.

knee aches a little but not too badly.. seems when i move on it it makes it better. called the doc and left a msg on it yest since lesa read that it could cause some blockage of oxygen to knee and some type of surgery… so want to make sure that doesn’t happen.

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knees, health

well, i feel pretty good so far.. still hazy in my mind and doing a million things (cleaned floor, garage, mulched, worked out, programmed like demon, etc)… I don’t know . i feel crazy but yet healing.. Tho the BMs are not all that stable.. I wish they would improve more. I don’t know if I wish that or getting off meds quicker sooner. I go in for infusion #3 this Weds at Va. Mason… Went to bed at 8:30, got up at 12:30 to pee, then up at 3 now permanently. Not a bad night. Waiting for 5 to come so i can go work out, then come back at 6 and walk with elsa if she’s up. I should go eat something. Eating like a pig… but trying to avoid sodium since they say that’s why my knees ache (something with preds).

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Knees

My right knee is swollen.. It hurts. Elsa says that it is sodium retention (and to lay off fried foods/chips).. This is a weakness right now. craving salt… legs in general are swollen. Not really liking this too much but after a massage it seems to help.

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I can’t believe

I forgot to mention the wonderdrug I’m on. Remicade. Soon I will go over to Imuran to get me off the steroids. (Imuran combats the negatives of Remicade). Found out that my odds of getting lymphoma with Remicade go to 1/500 now. Great!
This is supposedly the latest and greatest in the battle against Crohn’s. I go in for my next infusion 7/12 (3 hr infusion at Virginia Mason).

Also, I’ve booked an appointment with Dr. Lee out of the University of Washington. Supposedly the 16th best in the nation. We’ll see if he has any 2nd opinions on my state.

Also, yesterday I noticed that my right knee ached a little. Hope that has nothing to do with anything. I slept from about 8:30 to 3 this morning. What weird days for me.

They lowered my pred to 50mg a day now, all in the morning. Didn’t notice much difference. Stool was a little bloodier yesterday.. Hope it was just due to something that didn’t agree with my ulcers.

Love the amount of energy I have these days, however still feel weak and hazy due to probably lack of sleep (and muscles).

all for now….

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Ok so I’ll start

The living wall… As we talked about.. A google-maps ish type of thing where time is constantly scrolling by. I’m working on the backend info on what they used to do gmaps with but it could be interesting..

other things on it… a scrolling ‘news’ thing at the top… that we automatically append the latest google news hot title on.. say every 2 hrs… just text… then at the bottom maybe just banner ads…

also maybe different living walls.. like the ‘master’ one.. or ones for people to share for their group.. like if they have a kid they upload it to that date/time.

other thoughts?

Just found out the living wall is taken.. other ideas?

scrolling life?

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At the tulip festival

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Tornado Moves to Seattle #; transcript

Tornado: any seattle area folk present
Tornado: got some questions
trout: yes
Tornado: k as you may or may not remember, we are debating moving up there.
Tornado: boss says to limit search to seattle area
Tornado: these are the cities we are interested in and therefore would like your opinion(s) on:
Tornado: Snoqualmie Valley/North Bend/Preston/Fall City
Tornado: Fremont/Ballard
Tornado: Brementon (ferry access only?)
Tornado: Maple Valley
Tornado: Kent/Renton
Tornado: Mulkilteo
Tornado: and
Tornado: Mill Creek
Tornado: …stop…
* Tornado awaits trouts insightful response
trout: I don’t know a lot of those areas..
trout: But I like North Bend, fremont, Ballard..
Chunk: I think it depends on what you’re looking for..
rozo: Tornada: Snowq is not near Seattle
rozo: Ballard/Freemont is 15min away
Chunk: wanting to be right in the city ? or outside and have more space ?
rozo: Maple Valley is 45min away (rush-hour)
Chunk: fremont 15 min away ? more like 5 🙂
Tornado: space
rozo: Kent: is 30-40min rush hour
rozo: chunk :rush hour
Tornado: combined with keeping commute to city to a “normal” level
Tornado: ie, within 1.25 hours
Tornado: one way
Tornado: (fyi, that is “normal” here in LA)
rozo: all of those are under an hour
Chunk: ah
rozo: except maybe Snoqualmie during rush hour
Tornado: space/trees/yard is most important
Tornado: commute is #2 or #3
rozo: then you want the south and north end
rozo: are you going to buy a house?
Tornado: yes
trout: you can get space in north bend
Tornado: chunk you once mentioned looking north of city. what cities were you thinking?
Chunk: greenlake, kirkland..
rozo: Tornado: if you want a yard and very close to the city, then Shoreline is your best bet
Chunk: I wouldn’t throw out east though.. like issaquah
rozo: Issaquah is very nice too
rozo: Issaquah and Newport Hills is w here I plan to buy
rozo: maybe newcastle
* Tornado writes furiously
Chunk: is newport hills near issaquah ?
rozo: it’s before Issaquah
Chunk: ah
Tornado: rozo not imparitive that I live too close
oaf: haha
rozo: south of I90
rozo: Tornado: East and South are best. Traffic is lightest in those directions
rozo: although Issaquah has horrible traffic (city streets) the freeway is fine once you get on it
rozo: you need a realtor.I know a good one
Tornado: i will yes
rozo: also have a good friend who’s a loan officer
Tornado: she/he will need to be prepared to spend a weekend with us…. Soon 🙂
Tornado: we’ll be flying up
Tornado: to “look it over” and see if we can see some houses.
Tornado: by the way.. if this DOESNT go down… my move up there… We will be hiring a Systems Engineer up there.
Tornado: we are hiring an account executive to work with me there
rozo: cool
Tornado: if you have referrals
rozo: have you hired an account rep yet?
Tornado: nein
Tornado: we will be soon
Tornado: interviewing
rozo: which company?
Tornado: ->rozo: Apple
trout: tornado are they opening an office?
trout: or work from home?
Tornado: from home
Tornado: the only way to fly 🙂
trout: nod
rozo: Wendy Ludlow – First Horizon Mortgage 206-523-5455 Tell her Michael Rose sent you
Tornado: ->rozo: will do.. you like her eh?
Tornado: ->rozo: and thanks
rozo: yea, I’ve been friends with her for like 8 years and sent her a lot of business, no complaints from anyone
Tornado: ->rozo: great.. hope she doesnt mind if we take up a weekend w/her soon.. we can get preapproved and all that stuff that realtors like when they know they have a serious buyer
Tornado: any other last minute comments about possible places to look?
rozo: oh she’s a mortgage person. She would do the prequalifing for the realtors
Tornado: i have to go make my “presentation” to the wifey
rozo: i’m looking for my realtor contact
Tornado: from the ‘experts’
Tornado: ->rozo: oh gotcha
rickster: hmm systems engineer
rickster: i’ll do it!
rickster: 😉
rozo: she should be able to prequal you over the phone
Tornado: i can get you in for the interview if you are serious and if I don’t take it
trout: new trailer for kill bill
Tornado: ->rozo: cool!
Chunk: heh
Chunk: I think all the good areas have been mentioned
Tornado: roger.. thanks for the input guys.
Chunk: I wouldn’t go to a place like bremerton where you have to commute on a ferry
Chunk: expensive and time consuming.. ferries are only fun when vacationing 🙂
Tornado: uh yeah.. that is a big no no.. i don’t know if she knew that
Tornado: but I could look so sophisticated.. commuting to Seattle.. smoking a pipe on deck..
oaf: Smoking is for the weak minded.
Chunk: hehe
rickster: ya, screw bremerton
Chunk: that’s true
Tornado: sipping some non-starbucks coffee
rozo: Chunk: ferries will soon have 802.11 though
rozo: 🙂
rickster: federal way
rickster: big deal
rickster: ferries need free blowjobs
rickster: you pay enough to ride they should be included
rozo: http://www.cbbain.com/AgentDetail.asp?C=375
rozo: she is really good. I worked with her awhile back but she only does 800K and above (I think)
Tornado: ->rozo: excellent.. heh she looks like a realtor 🙂
Tornado: ->rozo: er.. i no can do 800k 🙁
rozo: this SE you’re hiring would need to be a MAC guy, right?
rozo: http://www.cbbain.com/MapKing.asp
Tornado: ->rozo: hah… I suppose he could always still submit a resume
rozo: that’s a good site for doing home searches. Local company with severl offices in the area
Tornado: ->rozo: nice!
rozo: darius is a apple guy and sharp.
rozo: he used to be the CTO at freei.net
Tornado: ->rozo: is he looking?
rozo: yes
trout: heh
trout: i need to see buba ho tep too
rozo: what’s your email. I’ll have him send you an email
Tornado: ->rozo: tornado@apple.com
rozo: hehe. nice
Tornado: ->rozo: 😉